I hear about these things through the grapevine in San Francisco. There's a subculture there that's all about optimizing their healthcare with as much data as possible; having seen what's possible, you really come to believe that primary care as it exists today for most people under 55 is basically a scam. I have two personal friends who are probably only alive now because they were more proactive about getting health data! (No joke, abnormalities found on MRIs turned out to be early stage cancer.) And a bunch more friends who are overall much healthier than they were before because now they have numbers to move. (Or numbers that move faster: for example, using Dexcom G6s has been catching on as a hack to lose weight because the gradient is much better behaved than a scale.) I also saw one case where someone was diagnosed with cancer and they put together a research team to help guide their treatment... and they ended up developing all this experimental medicine for him which, while ultimately unsuccessful, is thought to have added about a year of life. (Did you know that the FDA can grant single-patient INDs over the phone within one day? [0])

There's a lot of accumulated knowledge out there on how much better healthcare can be for motivated patients who can afford to pay for some of it out of pocket, but it's seen as pretty contrarian, so not discussed that openly. (Just see the other comments in this thread about how "overtesting" is a dangerous waste of resources...)

I don't know of an online community or blog that collates all this info well, but Peter Attia's blog/podcast is a good place to start: https://peterattiamd.com/

[0] https://www.fda.gov/drugs/investigational-new-drug-ind-appli...